Find ways to connect with others and understand what help may be available at EDS Support UK, including benefits and disability information. If you need EDS and HSD advice in other languages, you can also download our translated information sheets in Welsh, Gaelic, Hindi, Bengali, Urdu or Punjabi.
Benefits | Disability rights | Support Groups | Adviceline | Join Us | Webinars | Fragile Links
EDS UK is a paid member of Benefits and Work and members of EDS UK are free to access the guides that can help with benefit claims and appeals. To obtain any of these guides, please make sure you are logged into your paid membership and then click below.
PLEASE NOTE – you must be a member of EDS UK to request these guides in line with our agreement with The Benefits and Work organisation. You cannot access them without logging in.
The Disability Law Service provides free legal advice to people with disabilities and their carers to ensure that they have access to their rights and justice. They advise on community care, employment, housing and welfare benefits.
You can access the service by phone (0207 791 9800) or by email:
A range of fact sheets is also available on the Disability Law Service website.
You can visit the Government website to find out more.
We work with the Association of Disabled Professionals (ADP), a disabled-led organisation that understands EDS and can give practical employment advice, including workplace adjustments and routes like Access to Work.
You can visit their website here
The links below provide general information on disability, for example, disability rights, grants for equipment and advice for disabled students.
We have over 100 support groups, online and in person, offering a safe and friendly space to meet others and learn from each other. Each group also has a closed regional Facebook group for members.
All groups are run by volunteer Area Coordinators who organise meetings across the UK. They come from all walks of life, including people living with EDS and people who care for someone with it. We are deeply grateful to our volunteers, and to our funders who help cover meeting costs, volunteer training and more.
Please check our FAQs as this may help you find the information you need quicker.
You can find these here
Our free telephone and email Adviceline is available to everyone, including people with EDS HSD, their families, friends, carers and healthcare professionals.
The advice we can give is specific to EDS and HSD and we can help with questions on areas such as:
We are only able to provide advice about EDS and HSD so if you need an immediate response or are at risk of harm please contact 999, your GP or the Samaritans on 116 123 available 24/7. You can also text SHOUT to 85258 for 24/7 support.
Fragile Links is the EDS UK bi-annual members magazine, and is the only magazine in the world for people with EDS and HSD. It shares management advice from expert medical professionals, charity news, patient stories and much more.
Choose a print or digital copy. Stay informed, connected and supported with every issue and help give more people affected by EDS and HSD a stronger voice.
Fragile Links magazine is delivered all over the world!
Watch EDS UK webinars on topics including pain, physiotherapy, self-management, children, pregnancy and PoTS. Buy access through our shop to join live, hear directly from expert speakers and ask your own questions, or visit our YouTube channel to catch up on the latest recordings.
Was this page helpful today? Get more support like this by becoming an EDS UK member, with access to Fragile Links and other useful resources, while helping more people affected by EDS and HSD get the information and support they need.
