The Ehlers-Danlos Support UK
Become a memberFounded in 1987, The Ehlers-Danlos Support UK (EDS UK) is the UK’s largest charity dedicated exclusively to the Ehlers-Danlos syndromes and hypermobility spectrum disorder. We provide clear, evidence-led information, a free telephone and email Adviceline, and 100+ support groups across the UK. We also work to improve understanding and reduce inequality, so people can get the care and support they need.If you are living with Ehlers-Danlos syndromes and hypermobility spectrum disorders (EDS and HSD), you deserve support and fair access to the right diagnosis, treatment, and management wherever you live in the UK. For nearly 40 years, we’ve worked with our members to build that support, by bringing people together and sharing clear, trusted information.
New or unsure about EDS and HSD?
What is Ehlers-Danlos syndromes and hypermobility spectrum disorders? Make sense of your symptoms and feel more informed and in control.
Become a member
- Connect through 100+ online and face-to-face support groups across the UK, with closed regional Facebook groups for members. Ask questions and feel understood by people who understand
- Access benefits and work guides, including support with PIP, ESA and Universal Credit, so you can feel more prepared and less overwhelmed
- Watch management videos you can return to whenever you need them, to help with your management and daily living
- Receive Fragile Links, our members’ magazine, which is sent twice a year (Summer and Winter) with practical advice, charity news and lived-experience stories
- Apply for a place in our Nourished© programme, our dedicated diet and nutrition programme for members
Shop
Explore our live webinars, practical self-management support, special events, medical cards, information for professionals, and awareness materials. When you shop with us, the profit from your purchase helps fund essential support across the UK for people affected by EDS and HSD.
