Leave a lasting legacy

Fund the long-term support the EDS and HSD community needs

For too long, people with EDS and HSD have had to fight to be seen and believed. By leaving a gift in your will, you can help create a future where no one faces that struggle alone.

Your legacy could help more people receive an earlier diagnosis, access appropriate care, and find understanding. Together, we can build a future with better awareness, better outcomes, and stronger support for everyone affected by EDS and HSD.

Help build a better future

After taking care of the people closest to you, leaving a gift in your will to The Ehlers-Danlos Support UK is a powerful way to create lasting change.

Your legacy could help:

  • Provide trusted information and support
  • Connect people with a community that understands their experiences
  • Improve awareness of EDS and HSD among healthcare professionals
  • Support earlier diagnosis and access to appropriate care

Your gift could change lives for people living with these often misunderstood conditions, now and for generations to come.

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Every gift matters

A gift of any size will make a difference.

Many supporters choose to leave a residuary gift – a percentage of their estate after other gifts have been made – helping to ensure the value of their gift keeps pace with inflation. You can also update your will at any time should your circumstances change.

Leaving a gift in your will is often simpler than people expect. It can be as straightforward as adding a short clause to an existing will.

Whatever you choose to leave will be valued and used to support people living with EDS and HSD across the UK.

If you would like to discuss leaving a gift in your will or have any questions, our fundraising team is here to help. Please email fundraising@ehlers-danlos.org or call 07947 775 781.

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Make an impact today

If you are not ready to leave a gift in your will, you can still make a difference today.

Your donation will help people affected by EDS and HSD access trusted information, vital support and advocacy when they need it most. Together, we can ensure that no one has to face these conditions alone.

Donate today