Banbury
Aimee
Hi everyone, my name is Aimée (they/them) and I am excited to meet you all!
My own path to getting diagnosed with hEDS (alongside other chronic conditions) was long and debilitating – I hadn’t even heard of EDS until my diagnosis in 2018, so I instantly got why we’ve adopted zebras as our mascot (lots of doctors suggested ‘horses’)! I was very thankful to find the EDS UK website and found it validating to find others like me and reassurance it wasn’t ‘all in my head’!
I want to help provide others with a sense of community and a safe space to be themselves and find support. I’m neurodivergent myself, and researching links between EDS and ADHD/autism became a special interest for me, as well as finding ways to manage and improve my condition.
I love music (everything from classical to metal!), and have lived abroad several times, including Japan for several years. I love the outdoors and feel very lucky my mobility has improved enough to run through nature! I aim to create a welcoming space of connection and support for zebras of all kinds and hope to see you soon.
Upcoming meetings
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.