Our people at EDS UK

Catherine joined EDS UK for the chance to make a real difference to the EDS and HSD community and loves that no two days are the same.

Laura Kyriacou has a long history in the charity sector, and with a few friends affected by EDS, she jumped at the chance to bring her skills to a cause that matters to her and support the community.

Nikki joined EDS UK in 2019 after a long career in Children’s Services in the Local Authority.

Sabine joined EDS UK in 2021 because she wanted a role that blends clear advice with calm, empathic listening.

Susan brings over 25 years of charity leadership experience and passionately believes in equitable health care for everyone living with EDS and HSD.

Suzanne is a freelance Executive Assistant with many years of experience in the charity sector. With a background spanning safeguarding, HR, and education, she brings a caring, people-first approach to everything she does.

Starts September 2026

Starts September 2026

Starts September 2026

Charlotte Williams (Chair) is Deputy Chief Executive Officer at North West Anglia NHS Foundation Trust. She is a Trust Board member and leads on improvement & innovation, transformation, strategy, digital and organisational development. Charlotte is Associate Editor of the BMJ Leader healthcare journal and an Honorary Associate Professor at University of Birmingham and Senior Fellow at Bayes Business School, London.

Laure Nas de Tourris is an executive healthcare leader with 20 years of experience driving strategy and commercialisation having worked in consulting and pharmaceutical companies within different roles and geographies. Laure is also a member of the Healthcare Thinktank for the French Embassy in London advancing best practices for the life science sector. Laure has a personal interest in hEDS.

Tim is a Director and Board Trustee in the health sector.  He has led major health programmes across Public, Private and Government organisations, covering a range of services, including Primary Care, Children and Young People’s Mental Health, Acute and Community providers, commissioners and management consulting.  Previously, Tim held positions in telecommunications and charities. 

Helen has over 30 years experience as a Finance Director, working in both the charity and commercial sectors. She also serves as Treasurer Trustee for two other national charities.

Anne Lavery has a professional background in both adult education and science journalism. Prior to becoming a trustee, Anne had a long association with EDS UK as a volunteer running large support groups and events for the charity in London. Anne lives with hEDS.

Alison Roux has a background in Leadership Development and Organisational Development across a range of industries, working internationally and multi-culturally. She is also an accredited Executive coach and has an MBA from Cranfield School of Management. Previous experience on charity boards has led to a particular interest in safeguarding. Alison’s daughter has hEDS.

Jill has over 25 years’ experience across healthcare, life sciences and medical communications. Drawing on her lived experience of hEDS, she is passionate about improving care pathways, supporting research and empowering patient self-management to achieve better outcomes for people with EDS and HSD.

Yanina is Director of Innovation at Exemplas. She is a board-level leader with extensive experience in strategy, commercial direction & research-led innovation. Most recently, she’s led business, enterprise & innovation at University of Hertfordshire and chaired Healthcare Technologies Capability Connector (HTCC), a three-way partnership between Universities of Hertfordshire, Cranfield & Imperial College. Yanina’s daughter has hEDS.

Kathryn is a Chartered Accountant, specialising in public sector finance and passionate about enabling organisations to enhance their services and outcomes. Kathryn spent the first 10 years of her career delivering a range of finance roles in acute NHS Trusts, before moving to consulting where she provides finance and corporate services transformation support to organisations across the healthcare, education, justice and housing sectors.

Sarah Bullock is the Chief Compliance Officer for EY UK, a large professional services firm, and prior to that was an economist. Sarah has 30+ years experience of broad risk management and compliance expertise, operations and financial analysis experience. Sarah is passionate about disability inclusion having co-led the EY UK Ability Network and chaired the Diverse Ability Steering Committee. Sarah has a personal interest in EDS.

Natasha has over 20 years' experience in people and organisational development, specialising in leadership, culture and system-wide change. As a Director at a social enterprise consultancy, she supports strategy, partnerships and transformation across health and care. She also brings lived experience of hypermobile Ehlers-Danlos syndrome (hEDS) and is passionate about improving awareness, support and outcomes.