Information Hub

On this page you will find information about EDS and HSD

Health information you can trust

A lot of people look for EDS and HSD research and health information online. It can be hard to know what to trust.

We are proud to have the Pif Tick accreditation. Pif Tick is the UK’s only assessed quality mark for print and online health and care information. The scheme was launched in 2020 to help people easily identify reliable, evidence-based health resources. Organiations displaying the logo must pass an annual assessment proving they meet 10 core criteria for accuracy, accessibility, and transparency.

  • EDS UK is committed to clear, reliable information
  • We check facts and sources
  • We use the best available evidence
  • We keep content up to date where we can
  • We aim to be balanced and easy to understand
  • We collaborate with healthcare professionals with special interest and expertise in EDS and HSD and have an expert Medical Advisory Panel that meet regularly
  • We work with other charities to develop and share information. When it is helpful, we also signpost people to trusted information and specialist support from partner organisations