Webinars

Managing PoTS alongside Ehlers-Danlos Syndrome (EDS) and hypermobility spectrum disorder (HSD)
Dr Nicholas Gall is a Consultant Cardiologist at King’s College Hospital. He is also an Honorary Senior Lecturer at King’s College, London. He is a Cardiologist managing the full range of cardiological conditions with a special interest in the investigation and treatment of arrhythmia (cardiac electrophysiology), including inherited syndromes.
Dr Gall has published in many areas of cardiology and in particular on arrhythmia subjects and more latterly in PoTS. He has been involved in many research studies, particularly in syncope.
A research program particularly focusing on PoTS is ongoing with a number of recent publications. He has spoken at numerous conferences, both in the UK and abroad, on arrhythmia and syncope subjects. He has developed with colleagues the PoTS masterclass, the first PoTS-focused medical conference in the UK. He has run the highly successful London Syncope conference since 2010, focusing on the management of patients suffering transient loss of consciousness.

Jo Southall is an Independent Occupational Therapist & expert patient with many years experience self-managing complex health conditions. Jo lives with Hypermobile EDS (hEDS), Postural Tachycardia and Visual Stress. Her own lived experiences combined with OT theory, form the basis for her online practice.

Join us for an engaging webinar exploring how workplace adjustments and innovative technologies can empower employees, improve accessibility, and create more inclusive workplaces.

This session will examine practical workplace adjustments for people with disabilities, long-term health conditions, and neurodivergent employees, alongside the latest assistive technologies and digital solutions that support productivity, wellbeing, and independence.

Kevin Muldowney Physical Therapist, is the owner of Muldowney Physical Therapy in Rhode Island, USA and creator of the ‘Muldowney Protocol’ and wrote the very popular book “Living Life To The Fullest With Ehlers-Danlos Syndrome.” Kevin’s clinic treats over 100 patients every week with Ehlers-Danlos syndrome and the practice is committed to helping people with Ehlers-Danlos Syndrome live a better life.

His practice is committed to helping people with Ehlers-Danlos Syndrome live a better life.

Kevin lectures and presents all over the world and we are so grateful for his time in coming to speak to UK members about his protocol

Stuart McGoo is a trained counsellor and information and advice officer with over 10 years experience in supporting and advocating for clients.

He is a Welfare & Benefits Officer with over 10 years experience of supporting people with Health and Social Care Advice, Benefits advice including PIP, ESA, Pension Credit, Attendance Allowance, Carer's Allowance, Children's DLA, State Pensions and more besides. Additionally he is a disability rights specialist and campaigner for the rights of disabled people. He is a trained Welfare and Benefits Officer with many, many successful applications and appeals for disability benefits under his belt. Stuart also hosts a popular Youtube channel 'Talk to Stu' where he speaks about all things benefits.

In this webinar Stuart will be talking about the most up to date information on PIP, ensuring you are answering all of the questions in your disability benefits application in the best way possible – ensuring you are being honest and transparent about the challenges you face to ensure you are getting all of the information across clearly. Plus a section on being prepared for your interview. There will then be an opportunity for Q and A at the end.

In this webinar, Dr Linda Bluestein will discuss hormones,  menopause and connective tissue disorders. How estrogen, progesterone, and testosterone impact joint health, the benefits and risks of hormone replacement therapy (HRT), and why menopause can worsen EDS symptoms

Dr Matt Westerman presented his latest paper on Neurobiological and neuropsychological disturbance in EDS and talked through the findings.

Dr Matt Westerman is a Cognitive Neuroscientist and Postdoctoral Researcher at the University of Manchester. He completed his PhD in Cognitive Neuroscience at the University of Huddersfield, where he investigated how the brain makes decisions under uncertainty with a specific focus on the visual cortex. He now works with Dr Alex Kafkas on an MRC-funded project examining the role of central brain regions, particularly the thalamus, in memory and cognition. Alongside this, Matt conducts research into the neuropsychological effects of Ehlers-Danlos Syndrome (EDS) and the concept of pre-salience, a proposed mechanism that describes how the brain anticipates and prioritises information before conscious awareness. He has been clinically diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) and aims to bridge neurological, psychological, and clinical perspectives to improve understanding and patient care.

This webinar with Dietitian Chloe Hall explored the link between mast cell activation syndrome (MCAS) and diet, with a focus on practical strategies to help manage symptoms. We discuss MCAS symptoms, common triggers, ways to adapt nutrition for individual needs and answer common dietary questions asked by those with EDS and MCAS

Chloe is a Registered Dietitian with over a decade of experience working in the NHS specialising in gastroenterology and leading clinics for IBS, coeliac disease, and post-COVID gut symptoms. Chloe is also a dietetic advisor for national charities like Mast Cell Action and The IBS Network.

Professor Ravindran will be discussing a multidisciplinary systems approach to pain management in EDS and hypermobility including medicinal cannabis.

Professor Deepak Ravindran has over 20 years of experience in helping people overcome their pain – in the NHS and private practice. He is a Hon Professor at the Teesside university, Fellow of the Royal College of Anaesthetists, a Fellow of the Faculty of Pain Medicine, and a Consultant in Pain Medicine and Lifestyle Medicine. He presently serves as the Director for Pain and Lifestyle medicine at the Reading Central PCN. He is one of the few consultants in the UK who possesses triple certification in lifestyle medicine, musculoskeletal medicine and pain medicine. H

He has been a consultant in pain medicine from 2010-2024 at the Royal Berkshire NHS Foundation Trust in the UK. He is passionate about pain education and improving pain and health literacy and the author of the Amazon Best Seller, the Pain Free Mindset. His Youtube channel aimed at providing good health information is approved by Youtube Health, the Academy of Medical Royal Colleges and WHO FIDES network.

In this webinar Jeannie will talk all things hypermobile neck related