EDS UK is shaped by the voices and experiences of our community. By getting involved, you can help us raise awareness, improve understanding and support people affected by Ehlers-Danlos syndromes and hypermobility spectrum disorders across the UK.
Whether you have a little time, a bold fundraising idea, a workplace that wants to help, or a voice you want to use for change, there is a way for you to make a difference.
Support the EDS and HSD community by giving your time, skills or lived experience.
“I am so much happier since finding EDS UK! Millie who runs my local virtual meet up group is amazing and I’ve made so many friends and learnt so much since joining.”
Raising money for EDS UK is a simple way to show your support. Your efforts can help reduce the wait for a diagnosis and give people the answers they have sought for years.
“You make an enormous difference to many people.”
Whether you are a business looking for a formal partnership or an employee wanting to make a difference, collaboration and partnershipscan help us turn awareness into a future where everyone gets answers sooner and no one has to fight for treatment alone.
“Without your partnership with Mobilates, I would be screwed. My membership has changed my life and re-opened exercise as an option. I wouldn’t have tried it without you.”
Help more people understand EDS and HSD and Make May Matter!
Every May we raise awareness of EDS and HSD in the UK. Watch this space for updates on what we are planning for next May.
“Awareness and knowledge of these conditions is essential. If we had known what we had 50 years ago it would have helped a lot.”
Use your voice to help improve awareness, understanding and access to care.
“Keep inviting us to help. Our voices explain the realities, and if we are alongside the change, we can help make it work.”