Southampton

Hi, I’m Mary. I was born hypermobile my shoulder and ankles dislocated when I was born but was not diagnosed with anything until age 14. I had a year off school after a vaccination as they thought I had CFS.

It wasn’t till after my 3rd baby (age 30) they diagnosed hypermobility and FM (due to how the pregnancy and birth had been so bad) I went to Kings College hospital for 2 years and there a Doctor said he thought I had EDS but nobody specialised in it in Hampshire at the time so it was never mentioned again. Since then they’ve found I have IIH (lumber puncture diagnose) and MCAS and now finally I was formally diagnosed as EDS at 40. I’m coming up to 50 I have 3 adult children and I’ve been happily married 22 years.

I really want to have a group where people can help each other especially people who haven’t got full diagnoses as I know the sooner you get help the more you can adjust to living your best life!

I am contactable by email but I’m 50% deaf so no good with phone calls sorry!

I’m really looking forward to a chatty happy group and getting to know fellow EDS sufferers… let’s help each other.

Let’s make one big group where we can relax and hopefully feel like a big family.