Northampton

Hello and a warm welcome to you! I’m Tracey, with over 20 years of experience in home education, and more than 15 years as a Senior Nursery Officer & SENCO delivering childcare & education, I bring a deep understanding of child development, family dynamics, and inclusive care to my role as an Area Coordinator for Northamptonshire.

As someone living with EDS—and a proud mum to three grown up daughters who also live with the condition—I offer not only professional insight but also personal empathy. I understand the daily challenges; the resilience it takes to build family-tested strategies for managing daily life with EDS, and the importance of being heard. I know what it’s like to advocate in medical & educational settings, building those routines that support physical and emotional well-being, to managing flares while parenting, and to celebrate the small victories that others might overlook.

I’ve been where you are. That’s why I’m here—to walk alongside you, share what I’ve learned, and help you find your own path forward.

In my role, I provide support and guidance, facilitate local support networks, and advocate for greater awareness and access to care. Whether I’m organizing community events or simply offering a listening ear, my goal is to create safe, empowering spaces where individuals and families affected by EDS can connect, learn, and thrive.

I believe that knowledge is power, community is strength, and compassion is essential. Together, we can make a difference—one story, one family, one step at a time.