Hi my name is Samantha. I have lived with HSD all my life but only diagnosed last year.
As you can imagine I was relieved that the symptoms were real and terrified at the same time. I have just medically retired and worked as a Charge Nurse in the local hospital. I couldn’t find a lot of information and I’m a trained nurse!
I can only imagine how difficult it must be for anyone else .
I have great support from my family and friends and am so very thankful for organisations like this .
I am looking forward to working alongside everyone to see if we can make a difference together.
Hi my name is Gyllian and I have the great pleasure in helping Sam as Area Co ordinator in Dumfries Scotland. Our support meetings will focus directly on socialising and supporting with like minded people who share the same issues around EDS.
I was a teacher for a long time but since my diagnosis I am now a full time artist and maker living in Dumfries and Galloway. Being creative really helps my HSD. I have had a long journey before and after my diagnosis of Hypermobility Spectrum Disorder and it is through the understanding of this diagnosis that I have helped myself to manage the conditions I have.
A diagnosis can help you move forward but it also means you have to learn a lot. I hope that meeting you all we can all learn so much from each other and be validated in our struggle to lead as normal a life as we can.This isnt always easy and I understand that struggle so it will be a pleasure to see you all.
Join us at our meeting where you will be in an environment that will make you feel safe and relaxed.
Support group meeting – everyone is welcome, please feel free to bring a family member or friend with you. Refreshments are provided and the venue is accessible. For more information please email the volunteer Area Coordinator.