Cumbria

Hello – I’m Debbie, another Hypermobile EDS’er.

I can empathise with everyone’s daily struggles with EDS. You/we are not alone no matter how alone and isolated EDS may make us feel.

I know by my lived experience we are frightfully behind in knowledge and understanding of EDS in the Health, Social Care and Education sectors in Cumbria.

I’ve had a few ‘curve balls’ in life so I’m a tad resilient. I’m uni educated to Honors degree in Social Work. I aim to raise much awareness throughout Cumbria. I’m confident the EDS Community in Cumbria will grow. My hope is that a diagnosis should not be the end but the beginning of an empowering journey that enables us to take back some control in our day to day lives and in our wellbeing and that services and support become more accessible to us EDS’ers.

We have this interesting and unpredictable condition for life, it’s not going away so let us do our best to self-manage and be there for each other, together in Cumbria under the care and support of EDS UK.