Hello everyone I am Debbie and I am the Thanet Area Coordinator.
I am 35 years old and I live in Broadstairs with my partner and my three children, 2 of whom have EDS.
I was diagnosed with EDS in 2011 after years of health problems, misdiagnosis and chronic pain. I am excited about meeting fellow sufferers and their families and enabling you all to have access to the advice and support that EDS UK has to offer.
I like to organise meetings that enable members to gather information on EDS matters whilst meeting other EDS sufferers.
Hi there, my name is Katie – I am 42 years old and live in the Westbrook (Margate) area.
Like many Zebras I had a very bumpy road to diagnosis which spanned many years. I eventually received a diagnosis of Hypermobility Spectrum Disorder in 2004 which was updated to Hypermobile Ehlers Danlos Syndrome when the new criteria was introduced.
I worked as a Paediatric Nurse / Junior Sister for 17 years but sadly had to take early ill health retirement due to my declining health in February 2019. I look forward to meeting and interacting with fellow sufferers and would love to help facilitate and run regular meetings, coffee mornings and more to highlight all that EDS UK has to offer and to help others to access the help, advice and support that they need. I so look forward to meeting you all very soon!
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.