Medway

Hello! I’m Kara, and I’m delighted to be your Area Coordinator for Medway, Kent.

I was diagnosed with hEDS in 2021, after a lifetime of unexplained symptoms. I’d always known my body was hypermobile (double jointed at the time), but for years no one really listened, and my concerns were dismissed. Finally getting a diagnosis validated my experiences, and helped me find better ways to manage my health and confidence to seek reasonable adjustments at work.

I’ve learned to really value staying active. I participate in rock climbing, BMX freestyle and dabble with crochet and sewing. These are all difficult with EDS, but keeping moving helps both my body and my mindset. I focus on what I can do and adapt so I can keep doing the things I love.

I’ve spent over 20 years as a volunteer skateboarding and BMX coach, mentoring people of all ages and abilities, running events, and building inclusive spaces. I wanted to volunteer with EDS UK because I know how isolating diagnosis and symptom management can be. My goal is to grow a friendly, supportive group in Medway where we can share experiences, cheer each other on, and remind every Zebra they’re not alone.

I look forward to meeting you and building a strong Medway Zebra community together!