My name is Megan, I’m 22 and from Manchester. I was diagnosed with Hypermobile EDS (hEDS) at 5 and Postural Orthostatic Tachycardia Syndrome (POTS) at 14.
The journey to diagnose both conditions was tough. Although I don’t remember much from the EDS diagnosis, from what I remember, it was tough for my parents to know that there was something not quite right…. And then 5 years later, along came the genius who knew what they were talking about!
I was the only person, all throughout School and College years who has EDS and so felt pretty lonely in the sense that nobody could really relate to what I was going through. Till I started seeking support. Having a disability has only made me stronger as a person and advocating for those who have a disability has become my life mission.
I know how brilliant having someone you trust to talk to about anything in confidence. I’m only a Facebook message or email away if you need me!
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.
Support group meeting – all welcome. For more information please email the volunteer Area Coordinator.