Chelmsford

I’m Charlotte, and I’m excited to be your local Area Coordinator for Chelmsford.

After a random fall and an A&E visit, I found myself on the path towards an hEDS diagnosis. After a lifetime of unexplained symptoms and searching for answers, I was finally diagnosed in September 2025 — giving me a name for what I had been experiencing for so long.

I’m a Primary School teacher, and I’m passionate about creating supportive communities where people feel understood, connected, and less alone. Having experienced the challenges of navigating diagnosis and living with hEDS, I’m looking forward to bringing people together locally, sharing experiences, and helping to build a welcoming space for the EDS and HSD community in Chelmsford.