Channel Islands
Heather
My name is Heather, and after experiencing my own long journey to an EDS diagnosis, I’m passionate about supporting others as they navigate both the challenges of getting diagnosed and learning how to live their best life within a supportive community.
Adapting to mobility aids, managing the impact of surgery, and adjusting from a previously busy and active lifestyle has been a deeply personal challenge. Throughout this journey, I found invaluable support and information through EDS UK, which made a significant difference to me.
Along the way, I met many people who felt there were limited opportunities to connect with others facing the physical and mental health challenges of EDS. This inspired me to volunteer as an Area Coordinator for the Channel Islands. My goal is to help create spaces where individuals can meet, share experiences, access the wealth of information available through EDS UK, and feel supported—both face-to-face and online.
Upcoming meetings
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.