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Membership Information

You have selected the EDS UK Membership plus Fragile Links (Europe and Ireland delivery) membership level.

  • Access to management videos on the website
  • Access to Benefits and Work guides – support for applying for PIP, ESA, UC
  • Access to local support groups (UK patients and families only)
  • Access to regional closed Facebook Support Group pages (UK patients and families only)
  • A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes the next two editions (Summer and Winter). Delivery to a Europe or Ireland address.
  • Access to digital copies of previous editions online

The price for membership is £18.00 per Year.

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Contact Information

Additional Information

EDS UK volunteers run local Support Groups around the UK and closed regional facebook groups for patients and family/friends of people with EDS. You will choose a local group on joining but you are welcome to attend any support group. Please note you will need to choose a Support Group if you wish to join the regional Facebook groups.

Support Group Updates & Communication

Which groups would you like to receive email news & meeting notifications from?
 
 
Would you like to join our men’s group (Facebook and support group meetings) for members who identify as male?
 
 
Would you like to join our elder’s group (Facebook and support group meetings) for our older members?
 
 
Would you like to join our LGBTQ+ group (Facebook and support group meetings)?
 
 

Communication From Us

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Please consider adding a donation

Every day, people across the UK face the pain, uncertainty and isolation of EDS and HSD. Please consider adding a donation to your membership to ensure they don’t have to face it alone.

Gift Aid

Are you a UK taxpayer? Add an additional 25p for every £1 you donate.

Yes, I am a UK tax payer – I would like The Ehlers-Danlos Support UK to treat this donation and any donations I make in the future and have made in the past 4 years as Gift Aid donations, until I notify you otherwise. I understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all my donations in that tax year it is my responsibility to pay any difference. The Ehlers-Danlos Support UK reclaims 25p for every £1 you donate from the tax you pay for the current tax year.